With Us, Not For Us By Barr. Ijeoma Fynecontry

21^st of March of every year is the international day for the celebration of persons living with down syndrome. The advocacy and push for communal and political recognition of the basic fundamental rights for persons living with various types of disabilities, particularly intellectual disability, just as enjoyed by their peers who do not have any form of challenge – physical or intellectual, has recorded a substantial success around the globe, especially in more developed climes.

While the same cannot be said of the situation in Africa and Nigeria in particular, scanty breakthroughs have also been seen over the years, with the consistent and dogged efforts by some specialized organizations such as Down syndrome Foundation, Nigeria (DSFN).

The theme for this year’s celebration is “With us, Not for us”. This theme is apt particularly in the current era where the push for inclusion has taken a center stage in the campaign worldwide. While it is comforting to know that people, government and communities alike are now becoming more empathetic to the plight of persons living with disability, it is also necessary and most important that their rights as human beings deserving of not just empathy but actual concrete benefits accruable to other citizens without disability, is massively taken into consideration and actually provided for.

Therefore, it is not enough for the government to map out and create as in Lagos state and few other states, sections in the public schools to admit children or persons with intellectual disability, it is necessary to adequately equip these special schools with the needed “specialized” manpower, infrastructural and educational aids to attain the targeted educational goals for these persons. Likewise in the provision of better healthcare, economic, social needs of persons with disability etc.

Persons with intellectual disability do not just need to be specifically educated in accordance with his or her type of disability, but MUST also necessarily be able to aspire to or expect to be employed according to his or her learned ability. That way, a full right, befitting of a person, be him a person with disability or not, is assured. For what is the need of going through a learning process, acquiring a specialized knowledge about a craft or handiwork and eventually still not be given the opportunity of gaining employment as supposed, not due to lack of knowledge but for having a disability. No human being should be subjected to such. Our government should do better. The society at large should do better.

The theme for this year is enjoining all stakeholders – the government, communities, corporate organizations, religious bodies/organizations, individuals to open up their hearts, and recognized the very urgent and important need to help in the actualization of these basic human needs, rights of persons living with intellectual disability as we are all human. No human rights or needs should be prioritized over the other no matter the state of their health, mental and physical capacity. Stand with us by taking actual intentional steps towards uplifting and elevating the humanness of persons living with disability. It is not enough to say that you are for persons living with disability, your specific, intentional, targeted actions toward ensuring the practical applicability of these rights matters.

Ijeome Fynecontry is a Lagos based legal practitioner and the Legal Resource person for Down Syndrome Foundation Nigeria.