Early-onset Alzheimer's is a rare disease that significantly affects the lives of children and their families. This condition disrupts memory, thinking, and behaviour of the child, presenting challenges that can feel overwhelming for such a young person. The problems can become extremely unbearable for them to navigate alone, which makes it very important for every member of the family to cope with this condition and learn to patient as well as supportive. This listicle discusses six effective ways by which families can support their child.
- Create a Structured Environment – For a child suffering from Alzheimer’s, it is important to maintain a consistent daily routine which will provide them with stability. Making visual schedules and setting reminders can make a lot of difference between remembering and forgetting tasks. A child knows what to expect in a structured environment and it makes life more manageable for them, in addition to making them feel less anxious. It is reassuring for them to have a predictable rhythm, giving them some semblance of security during what otherwise can be an extremely confusing time.
- Inclusivity and Open Conversation - Creating an atmosphere where the child feels safe enough to open up and share their thoughts and feelings is essential to preserve his/her mental well-being along with showing support. Using easy language while being very patient, and encouraging them to discuss their fears as well as frustrations could help in building trust and having them realize that they are not alone.
- Memory-Stimulating Activities – Keeping the brain stimulated in a fun and creative way can become beneficial for cognitive development of the child. Engaging their brain using simple memory games, puzzles, and creative works like drawings or storytelling will not only improve their memory skills but also create positive experiences of accomplishments.
- Nutritious Diet and Physical Health - Besides a healthy and balanced diet, regular physical activities remain at the heart of good health. A colorful palate including a lot of fruits, vegetables, whole grains and healthy proteins will make eating healthy fun as well as easy for children. Encouraging children to engage in physical activities that uplift them—be it dancing, playing outside, or riding a bike— will significantly boost their mood, and even improve cognitive function.
- Being Patient and Understanding - Being very patient with a child suffering from this condition is one of the most important requirements. Knowing the moments of confusion, frustration, or behavioral changes the child may have, can help in managing the same with empathy. Acknowledging that every child's experience is different and similarly their needs will change, helps parents and families to provide a nurturing environment and fosters growth.
It can indeed be challenging, taking care of a child with early-onset Alzheimer’s. However, with the right interventions and the support of the family, a nurturing environment can be created that encourages growth and resilience. Caregivers can make young ones feel secure and appreciated, allowing him or her to lead an easier life.
Dr. Balaji B S, Consultant - Neurology & Epileptology, Aster Whitefield Hospital, Bengaluru